Tag: inflammation

Posted in Overall health

Relief!

Posted on by nlchronicles

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

That being said, I started using Humira to stop/slow the progression of Ankylosing spondylitis. The rheumatologist recommended it and am I glad that she did! I can move better and more and I no longer need to get up an hour plus earlier than a normal person would to start my day. While I still get tired (working full time, part time and going to school part time will do that!), the all day fatigue has lessened. The knee swelling that made my right knee look double its normal size has gone down. And so many more benefits!

I got news of the biggest change yesterday!

I’ve mentioned working on my bloodwork numbers before, especially iron and c-reactive protein because iron would be low and CRP (an indicator of inflammation) would always be super super high. I had been trying everything – lifestyle changes, totally changed how I eat, exercise, supplements. I had to do bloodwork yesterday morning to set a baseline on the medication. 

EVERY SINGLE FACTOR CAME BACK NORMAL!!

Even my iron level went up to normal and the C-reactive protein dropped to a normal level; the CRP level had been crazy high when I first had it tested in 2018. If my calculations are correct, my original CRP level was about 100!!!!! That’s at the border of the high level and points to an autoimmune condition. Now it’s less than 3! I am so thankful and so grateful for finally getting relief.

I realize that everyone does not go the medication route but after trying alternative solutions for 4 years, I am elated to find something that has been most helpful!

Posted in Life with doctors

What is this Ankylosing spondylitis?

Posted on by nlchronicles

In my last post, I talked about finally being diagnosed with Ankylosing spondylitis. And it’s still a huge thing to wrap my head around, especially since I’ve made such dramatic changes in my health. I’ll admit- sometimes I just want to say forget this push to be healthy and order a pizza (especially from my faves in Chicago) or drench everything in bbq sauce!!! But reality sets in and I know the consequences later will not be worth it so I don’t.

And this autoimmune condition of Ankylosing spondylitis, or AS, has no cure according to the resources that I’ve read. Any condition that ends in “itis” is indicative of inflammation and this is an inflammatory condition of the spine. It can also affect other joint areas. There are secondary issues that can occur with AS such as uveitis, inflammation in your eye which I’ve written about too as I’ve had that multiple times starting in 2009. And the cause of AS? No one knows though it’s believed to start with a leaky or impaired gut.

AS makes you really stiff, especially if you sit for a long time. Movement helps AS a great deal but it’s hard because when you’re in pain, the last thing that you want to do is move around! Stretching and functional movement are helpful and research shows that water based exercises are great as these don’t impact the joints. So I got a referral for that! If left untreated, AS can also cause fusion in various areas with your bones and you lose alllll flexibility and range of motion! 🤯🤯

While no doctor has stated this, I think AS is why I developed severe osteoarthritis at such a young age. The doctors just ask why I developed it so early; 🤷🏽‍♀️ how would I know?? I’m not a doctor. But to be better informed, I ordered a couple of books that are written by doctors who also have AS. Unlike me, both of these doctors have a genetic marker that is often seen with AS. And both found out much earlier than I did in the progression of the condition.

The doctors’ books offer insight on how they manage AS naturally, now. Both had taken different medications and decided that they would move forward without the meds. That’s the level that I eventually want to get to. I’ve been approved to take a VERY expensive medication to help relieve the chronic inflammation that I have. I’m hoping that as I start implementing the doctors’ recommendations, I can work with my doctor to decrease the medication. I’m also going to continue to focus on healing my digestive system and will move in the direction of working with a functional doctor who specializes in these types of conditions. And since stress can play havoc on the gut too, I took up my health care system’s offer to speak to a counselor. My hope is to find ways to better manage stress. Whew! That’s a lot!!

But I’m hopeful! If you are interested in the books by the doctors mentioned, leave a comment and I’ll include them below!

Posted in Life with doctors

Finally diagnosed …

Posted on by nlchronicles

I was in a car accident two weeks ago. A guy rear ended me and it wasn’t super severe. But since I already have neck issues and stiffness, I thought it best to get checked out. So the police officer had the paramedics take me to the ER. While there, the physician assistant sent me for X-rays and a CT scan to check for fractures; I had no physical bruises though I was sore on my back.

Fast forward to my results – the attending physician noted no fractures and stated that my images were consistent with someone who has Ankylosing spondylitis. Now, I’ve researched this condition on and off for a few years but this was the FIRST time a medical professional has ever said – yeah, you have this. The recommendation was to follow up with my primary care doctor which I did.

What is Ankylosing spondylitis? Easiest explanation is that it’s inflammation of the spine that can affect other joint areas as well. Since talking to my doctor last week, I’ve been poring over the research and I’m so angry that no one thought this might be a problem before. I’ve had two rounds of physical therapy for my knee and two rounds for my neck area. I’ve taken LOTS of aleve. I exercise and totally changed my eating habits and lifestyle yet I couldn’t have just ONE doctor to say – hey I’ve put two and two together and that equals this autoimmune condition????

So today, I just want to stress that you have to advocate for yourself. I was sent to see a rheumatologist who really listened. I’ve seen one before; he did a visual test and sent me for some bloodwork. Since I didn’t have the genetic marker and don’t fit the profile (I’m not a middle age white male), then he dismissed it. UGH! I’m so glad that the new rheumatologist listened, put two and two together and is working with me for a plan of action.

I’m fortunate – I work for a research doctor who is familiar with the condition. My cousin and a friend work in the pharmaceutical industry and provided more details on the medicine that is recommended. But so many others don’t have those resources at their fingertips. *sigh* and this is another reason for me to push with public health. Studies show that women of color don’t get the treatment that they need for so many conditions and just as often, they don’t even know what to ask for.

Whatever your medical state or condition, please advocate for yourself. Take the time to do the research. Keep pushing the envelope. It shouldn’t take a car accident or other incident for you to get the treatment that you need.

Posted in Updates

The AIP and me

Posted on by nlchronicles

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

If you caught my first update of the year, then you’ll remember that I wanted to try the AIP, autoimmune protocol. So what is it? It’s a complementary elimination diet to remove foods that could be a trigger and help heal your gut. There’s also a lifestyle component that focuses on sleep, reduction of stress and movement among other things. Now I will be honest, I tried a semi-elimination diet about 2 years ago but didn’t go all in.

And going all in for me is EVERYTHING!

I find that if I try to slowly transition, I’ll cheat because I keep putting off the next item to eliminate. This time, I did go about 95% elimination as there were food items that wouldn’t last too long. But I didn’t replace those. So now I’m going on all in. And here are my thoughts:

  • Meal prepping is crucial. Since I’ve eliminated so many things, I have to cook alllllll the time. I live in a college town and there are just lots of chain restaurants and fast food places. I do have a couple of go to places just in case but I’m trying to limit my use of those.
  • Sleep is your friend! I have to go into the office one day per week and need to get up earlier to be on time. But my go to bed time is about the same = less overall sleep. And I can definitely tell a difference.
  • Movement as exercise. This is a carryover from working with my nutritionist (who I’m starting to work with again!) but finding movement that works with you and doesn’t burn you out is important. I overdid my movement today while watching Encanto and dancing merengue in my living room! But I recognize that and will focus on restorative movements tomorrow.
  • Trying different recipes has been very helpful. I also track my nutrients in an app to see where I’m landing since the goal of AIP is to focus on nutrient density. In my case, dialing back my fats would be helpful.
  • And I can’t say enough about drawing inspiration from those who have completed the AIP and seen such tremendous progress. My goal is to try this for 3 months before methodically introducing food in stages. In full transparency, the first 10 days were not fun. It was like a detox for me but I know that doesn’t happen for most. If I have detox symptoms again next month, I’ll try introductions earlier. It’s recommended to do AIP for at least 4 weeks before reintroductions.

I’ll keep you posted on how this goes! Have you tried an elimination diet? If so, how did it go for you? Let’s share our experiences!

Posted in Life with doctors, Updates

Update: first of the year

Posted on by nlchronicles

So I had my annual physical with my primary care doctor today. I really like working with her because she listens and tries to help based on my lab results, how I’m feeling and what might have been treated by other doctors in the past. Below is my update on issues I’ve mentioned in the past:

  • Iron level: still sketchy. I tested 6 months ago and it was low. Now, it dropped almost another point even though I take iron 3 times each day and liver pills. Since I have heavier cycles, I’ll be getting some testing done with an ob/gym
  • C reactive protein level: still elevated BUT…lower! In the past, I had hs CRP measured but the lab with the doctor just did CRP. And from my understanding, the conversion is based on a factor of roughly 10. So in converting my 39.5 CRP to hs CRP, I would be at a 3.9! This is AMAZING!!!!!!! My last test was done at the end of 2020, around November and it was 19

So, mixed results. My weight was about 8 pounds less than last year but I’m not really concerned about weight. I’m more than okay where I am. I’m just trying to see what is going on with these iron levels!

What are my health intentions this year?

1. Increase iron level

2. Continue to decrease c reactive protein

3. Better mobility in knee and neck areas

To help, I started the autoimmune protocol. It’s basically an elimination diet to help lower inflammation, heal the gut and find out what food triggers I might have by systematically reintroducing foods with a journal of results. I’m starting with 3 months but may go up to 6 months if needed. And I’m trying to find a functional or integrative doctor.

What are your health intentions this year? How are you going to make it happen? All the best in this new year! 🤩

Posted in Overall health

What’s your why?

Posted on by nlchronicles

Everyday, I have a decision to make: to either do all the things to give me a chance to feel great that day or revert back to old habits that weren’t the best for me. Every. Single. Day. I say this because every day is NOT a great day but I choose to move forward with something that can help tomorrow.

Why? Even when it’s hard. Why? Even when I seem stuck. Why? Even when there’s no progress. Because I cling to my reasoning behind what I’m doing. See, when I started my journey in getting healthier, my nutritionist asked – what’s your why? I took that to mean- what’s the reason that is so strong that even when I don’t feel like it, I’ll keep at it. My why?

Elimination of pain

So as I’ve mentioned, PCOS can cause low grade chronic inflammation which I definitely deal with. Well when everything is inflammatory, then it can have negative effects on the body including the wearing and tearing of joints; this can lead to osteoarthritis. And arthritis is painful. Pain is that motivator for me.

I plan to start the autoimmune protocol diet in January to start targeting what may be causing pain and to heal the gut, which I need in the worst way. When you wake up in some level of pain everyday, then you will look for ways to reduce pain – physical therapy, gentle exercise, NSAIDs, more sleep, Epsom salt baths, CBD oil, dietary changes, weighted blanket. I’m trying them all in an effort to minimize pain and enjoy each day.

So what is your why? Whether you are just starting or looking for ways to stay motivated, I encourage you to find a strong reason to stay on track. Writing it down and sharing your reason with accountability partners are both great recommendations that I’ve used. On my vision board, I even include ways to accomplish my goal.

What is YOUR why? Share below and motivate someone today!

Posted in food

Meal time

Posted on by nlchronicles

I have been asked by some family members and friends a lot – what do you eat?! I think the misconception is that I barely eat or eat “weird” food. One person asked when I was going to go back to eating real food. I thought that’s what I had been eating! 🤷🏽‍♀️

So I’m including today’s meals. Breakfast was a homemade smoothie. I’m dealing with a flare up with my joints so I try to really focus on nutrients more at this time. I don’t have a picture but I just included –

  • Vitamins (I just open them up and dump into the blender)
  • Collagen powder
  • Flax seeds
  • Turmeric powder (have to get this inflammation down)
  • Cinnamon powder
  • Parsley
  • Dollop of walnut butter
  • Frozen berries and cherries
  • Coconut milk
  • Ginger root
  • Splash of honey and vanilla extract

Breakfast is super easy and I tend to have smoothies when it’s warmer or when I’m managing a flare up. Lunch was just a protein bar. I run errands on Saturdays and need something that I can have on the run. Not the best nutrient wise but it’s so much better than crying over fast food! True story!!

This was Saturday dinner. Weekend dinners tend to be different than what I eat during the week as I try to find something I wouldn’t get during the week. I happened to go to a particular grocery store and snow crab clusters were on sale 🤩🤩 the pic is 👇🏽

Trying to focus on nutrients and reduce this inflammatory response, I decided to have blueberries for antioxidants, black beans for fiber to get toxins out, roasted collard greens chips to capitalize on nutrients and crab legs for protein. I eat seafood wayyyyyyy more than any other protein so sale prices are always welcome 🤗 And I try to get at least 6 servings of vegetables and fruit each day. Again, focusing on nutrient density.

If I’m feeling up to it later, I may have a square of dark chocolate. Your thoughts on the food choices? What would you recommend? Until next time…

Posted in holidays

Sugar Rush

Posted on by nlchronicles

It’s that time of year when sweets are in abundance EVERYWHERE! I even saw this display at a local big box store. There were even TWO displays and they were gone within a couple of weeks 😱

Bags of sugar!

And it’s sooooooo tempting to give into all the sweets. But the sweets are laced with so much sugar! And yes, I used the word “laced” because sugar lights up the same parts of the brain as drugs. I have been researching the effects of sugar for years and while I don’t have the links for proof, please take the time to research what I mention below:

  • Sugar is addictive (as mentioned above)
  • Regular sugar has no nutrient value to add to your food
  • Sugar suppresses the immune system, making it harder to get better when you’re sick and consuming it
  • Sugar in excess seems to affect the level of sweetness that your taste buds become accustomed to
  • Sugar is detrimental to so many body processes and functions

When I consume too much sugar in a sitting or in a day, I can quite literally FEEL all these areas of my head lighting up because I try to minimize sugar as much as possible. My joints ache and hurt, making mobility much harder. And the uveitis in my eye begins to flare and it’s really hard to get that down. Whew!

So what do I do? When I do add sugar on purpose, it’s usually honey or maple syrup. I do have treats sometimes – there’s a non-dairy frozen dessert that I like or I may have portions of organic dark chocolate. But pain is a motivator and on my quest to live and feel optimally, then avoiding excessive sugar is a must.

Enjoy your holiday season! I’m just reminding you to be mindful of what you eat. Everything affects your body and wouldn’t it be great to be at your best over the holidays? 🤩 That’s my goal!

Got any recommendations on how to keep the sugar to a minimum during the holidays? I would love to hear your advice!

Posted in Updates

Then and Now

Posted on by nlchronicles

About a month into my journey to feel better, I started taking pictures to chronicle my progress as the scale doesn’t always correlate to progress. And I still do it because the body dysmorphia is real! I may not see myself as the size that I started, but I also don’t see my current size the same way others do.

So …the left hand picture is from September 2018. I remember buying that shirt; I loved it! It was a size XXL from JCPenney. The picture on the right is from last week. I am going to a funeral and, as usual, most of my clothes are too big *sigh*. I live by a Gap factory store that has AMAZING prices so I headed there to find something appropriate. The sweater is a small 😱 I haven’t worn a small since 8th grade while running track! The skirt is a size 8, both by banana republic 😱 I don’t ever remember wearing anything below a size 9. I’m always amazed when I see these comparisons.

How it started. How it’s going

And as you can see, I still have a knee sleeve on as my right knee continues to be a challenge. That day, I had gotten steroid shots in both knees so I’m still researching ways to improve joint health and minimize inflammation and arthritis. I plan to start the autoimmune protocol (AIP) in January to continue to reduce inflammation and figure out what triggers I may have.

I’m also focusing on gut health and started a new probiotic that is supposed to be great. With all the research available about the gut and the need for bacterial diversity to support health, I’m hoping that the probiotic, along with continued modifications, will help. And on most days, I aim for 5-6 servings of veggies and 1-2 servings of fruit along with protein; I eat a good deal of fish. All of this is a change from then to now.

Let me know what changes you’ve made and seen in your health. And any tips to reduce inflammation are great appreciated! To your good health…

Posted in Health experiments

Experiencing Cryotherapy

Posted on by nlchronicles

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

Sooooo I decided to give cryotherapy a try! It’s touted to help decrease inflammation, which I am still trying to work on. So I thought- why not?! I decided to search for locations in a couple of areas and landed on one that has a special if you were visiting for the first time. Great!

Near the entrance

While the location that I visited was small, the staff was super helpful. I used the changing room to switch to shorts and a workout shirt. Then I had to pile on a ton of safety gear so that there’s no frostbite or anything; this includes heavy gloves, extra thick socks, heavy slippers and a covering for my ears. I felt like I was going camping in Alaska!

Then the attendant explained that I would walk into the first chamber for and be there for 20 seconds. He would then buzz for me to enter the freezer where I would be for 3 minutes! I do like that they allowed me to pick my choice of song that would be played inside the chamber to take my mind off the cold 🥶

Just outside the cryo chamber

The first chamber actually was not that bad. But when I had to step into the freezer – 😱 is I’m sure what I looked like. Well not at first. I wasn’t sure what to expect since I tend to get cold really easy. But it wasn’t bone chilling cold, just I’m shivering through these 3 minutes cold! But I made it out 😁

Would I go again? Yes- I want to get tested for my c reactive protein level before I go again and then retest in about six months to monitor the effectiveness of cryotherapy. They also have an option to do localized cryotherapy which I could try on specific parts, like my knee. I think that would be helpful.

So what about you? Have you tried cryotherapy or similar? Let me know what you think and share your story!