Tag: alternative therapy

Posted in Overall health

Relief!

Posted on by nlchronicles

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

That being said, I started using Humira to stop/slow the progression of Ankylosing spondylitis. The rheumatologist recommended it and am I glad that she did! I can move better and more and I no longer need to get up an hour plus earlier than a normal person would to start my day. While I still get tired (working full time, part time and going to school part time will do that!), the all day fatigue has lessened. The knee swelling that made my right knee look double its normal size has gone down. And so many more benefits!

I got news of the biggest change yesterday!

I’ve mentioned working on my bloodwork numbers before, especially iron and c-reactive protein because iron would be low and CRP (an indicator of inflammation) would always be super super high. I had been trying everything – lifestyle changes, totally changed how I eat, exercise, supplements. I had to do bloodwork yesterday morning to set a baseline on the medication. 

EVERY SINGLE FACTOR CAME BACK NORMAL!!

Even my iron level went up to normal and the C-reactive protein dropped to a normal level; the CRP level had been crazy high when I first had it tested in 2018. If my calculations are correct, my original CRP level was about 100!!!!! That’s at the border of the high level and points to an autoimmune condition. Now it’s less than 3! I am so thankful and so grateful for finally getting relief.

I realize that everyone does not go the medication route but after trying alternative solutions for 4 years, I am elated to find something that has been most helpful!

Posted in Life with doctors

What is this Ankylosing spondylitis?

Posted on by nlchronicles

In my last post, I talked about finally being diagnosed with Ankylosing spondylitis. And it’s still a huge thing to wrap my head around, especially since I’ve made such dramatic changes in my health. I’ll admit- sometimes I just want to say forget this push to be healthy and order a pizza (especially from my faves in Chicago) or drench everything in bbq sauce!!! But reality sets in and I know the consequences later will not be worth it so I don’t.

And this autoimmune condition of Ankylosing spondylitis, or AS, has no cure according to the resources that I’ve read. Any condition that ends in “itis” is indicative of inflammation and this is an inflammatory condition of the spine. It can also affect other joint areas. There are secondary issues that can occur with AS such as uveitis, inflammation in your eye which I’ve written about too as I’ve had that multiple times starting in 2009. And the cause of AS? No one knows though it’s believed to start with a leaky or impaired gut.

AS makes you really stiff, especially if you sit for a long time. Movement helps AS a great deal but it’s hard because when you’re in pain, the last thing that you want to do is move around! Stretching and functional movement are helpful and research shows that water based exercises are great as these don’t impact the joints. So I got a referral for that! If left untreated, AS can also cause fusion in various areas with your bones and you lose alllll flexibility and range of motion! 🤯🤯

While no doctor has stated this, I think AS is why I developed severe osteoarthritis at such a young age. The doctors just ask why I developed it so early; 🤷🏽‍♀️ how would I know?? I’m not a doctor. But to be better informed, I ordered a couple of books that are written by doctors who also have AS. Unlike me, both of these doctors have a genetic marker that is often seen with AS. And both found out much earlier than I did in the progression of the condition.

The doctors’ books offer insight on how they manage AS naturally, now. Both had taken different medications and decided that they would move forward without the meds. That’s the level that I eventually want to get to. I’ve been approved to take a VERY expensive medication to help relieve the chronic inflammation that I have. I’m hoping that as I start implementing the doctors’ recommendations, I can work with my doctor to decrease the medication. I’m also going to continue to focus on healing my digestive system and will move in the direction of working with a functional doctor who specializes in these types of conditions. And since stress can play havoc on the gut too, I took up my health care system’s offer to speak to a counselor. My hope is to find ways to better manage stress. Whew! That’s a lot!!

But I’m hopeful! If you are interested in the books by the doctors mentioned, leave a comment and I’ll include them below!

Posted in Health experiments

Experiencing Cryotherapy

Posted on by nlchronicles

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

Sooooo I decided to give cryotherapy a try! It’s touted to help decrease inflammation, which I am still trying to work on. So I thought- why not?! I decided to search for locations in a couple of areas and landed on one that has a special if you were visiting for the first time. Great!

Near the entrance

While the location that I visited was small, the staff was super helpful. I used the changing room to switch to shorts and a workout shirt. Then I had to pile on a ton of safety gear so that there’s no frostbite or anything; this includes heavy gloves, extra thick socks, heavy slippers and a covering for my ears. I felt like I was going camping in Alaska!

Then the attendant explained that I would walk into the first chamber for and be there for 20 seconds. He would then buzz for me to enter the freezer where I would be for 3 minutes! I do like that they allowed me to pick my choice of song that would be played inside the chamber to take my mind off the cold 🥶

Just outside the cryo chamber

The first chamber actually was not that bad. But when I had to step into the freezer – 😱 is I’m sure what I looked like. Well not at first. I wasn’t sure what to expect since I tend to get cold really easy. But it wasn’t bone chilling cold, just I’m shivering through these 3 minutes cold! But I made it out 😁

Would I go again? Yes- I want to get tested for my c reactive protein level before I go again and then retest in about six months to monitor the effectiveness of cryotherapy. They also have an option to do localized cryotherapy which I could try on specific parts, like my knee. I think that would be helpful.

So what about you? Have you tried cryotherapy or similar? Let me know what you think and share your story!

Posted in Health experiments

Trying CBD

Posted on by nlchronicles

So I’ve read the info about CBD oil and given my battle with inflammation and sleep challenges, I decided to give it a try because why not 🤷🏽‍♀️ What do I have to lose but inflammation?! And if I sleep better, inflammation naturally decreases.

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

I tried more than one brand on my way to choosing the one that I use now. Since I don’t want a potential lawsuit, I’ll not mention the names of the others. The first was from a health food store that I frequent often. It seemed to work but the taste was awful. Just imagine eating weed. That’s how the oil tasted as it was unflavored. I don’t know how anyone could use that long term. So I decided to try flavored CBD oils. One flavored one was from another health food store that I go to alllllll the time. A plus for the flavor but OMG- I stayed sleepy with that brand and always had brain fog. So I kept researching until …

I decided to give One Farm a try. Now, I really didn’t want to try it because I have to order online and I’d rather get something in person, if possible. I learned of the brand through my part time job; I work for a research doctor who had discussed the results of studies and mentioned this product. So I made sure to order a flavored version.

And – this one has a great taste which is a plus for sure. I tend to sleep better when I take a dose along side winding down at night (easier said than done!). I’m not sure where I stand with inflammation levels just yet. I am researching functional doctors so that I can get my C Reactive protein tested and see where I land. My trial period is always 3 months to decide whether I’ll stick with a practice as natural methods tend to take more time to resolve issues.

Just a note – I am not affiliated with One Farm. I do not get any kickbacks from mentioning the product here. They have other products that I’m going to try in the future and will share the results. Have you tried any CBD products? What has been your experience?

Posted in Health experiments

Turning Off Nerves – Wellness Wednesdays

Posted on by nlchronicles

For the last few months, I have been working with a pain management specialist regarding some areas of osteoarthritis that I still contend with. The area of greatest concern is my neck which seemed impossible to fix, no matter how many physical therapy sessions I go to.

Allow me to remind everyone that I am not giving medical advice, but just sharing my journey that has allowed me to move toward better health.

I have had a hard time with mobility in the neck cervical area. And sometimes it can be worse than others to the point that I have to take Aleve to try to get the area to move more. Is it better than before? Yes, but it is still not great. Then there is the pain that occurs at times, which can lead to a headache. What to do?

My physical therapist in North Carolina recommended that I see a pain management specialist to see what options might be available so that I don’t take meds as often. That can have its own side effects and I don’t want even more issues.

So I worked with a specialist over several months. For insurance purposes, I had to go through a couple of rounds of testing to see how well the procedure might go. And I passed those, which was great. I then did the formal procedure. The procedure numbs the nerves for up to a year with radiowaves. I was given a bit of pain killer to take the edge off the pain. But it still hurt!

And while I’m not 100% (yet!), I have seen some improvement. I started physical therapy again and my physical therapist noticed a difference too even though I hadn’t been in 6 weeks! Has anyone else found a way to better manage arthritis? If so, I invite you to share your experiences. See you next week!

Posted in Uncategorized

Conferencing

Posted on by nlchronicles

As I mentioned previously, I work with a nutritionist to manage PCOS. And it’s worked wonders. I’ve even been asked to speak on a panel for an upcoming conference about pcos in January that’s being held in California. (I hope I can get off work then!) Hopefully, my statement can inspire you or someone you know who manages hormone related challenges; positive change IS possible. It takes real commitment and a different level of effort (lots of tweaking to find out what is best for me), but I’m so glad to know that it’s even possible.

See, for so long, I thought I was just doomed to be on birth control pills forever as prescribed by physicians; I even had a pcos “specialist” tell me that my best course of action was to just remain on the pill forever! WTH!!! I knew that I had to find a better solution that reduced the need for medication- that takes a toll on your body because we aren’t meant to ingest such things for a long time. Western medicine has perfected the art of acute care but this doesn’t translate over to managing long term health challenges or improving their condition. Keep searching, doing the research and challenging the system so that alternative solutions might be covered by insurance.

The excerpt below is my statement for the conference:

🥂 to your good health! Until next time …

Posted in Uncategorized

The present

Posted on by nlchronicles

Where things stand now- so after all of the drama of just trying to get a diagnosis, it seemed like I got worse and worse, especially due to stress. Not only was I diagnosed with PCOS, I was later informed that I have osteoarthritis in BOTH knees so I did physical therapy for it twice. Herein lies the issue- I was successful with physical therapy both times but since PCOS is associated with low grade inflammation, the physical therapy is pointless until the initial inflammation is dealt with. So, I started looking for other solutions and came across the Insulite system. Now, I’m not here to sell anyone anything. But the results these women were getting was amazing so I signed up for the newsletter and joined one of the Facebook groups.

But, not having the money to try the supplements and not making the sacrifice to at least try them for 3 months, all I did was follow the newsletter and FB group. I could, however, afford the book 8 Steps to Reverse Your PCOS and pored over it. And I started trying smaller quantity supplements mentioned multiple times in the book. And I started having some results along with beginning keto in August of 2018. Keto is a bit too harsh for me as I respond well to veggies and most fruit so after getting sick from it, I started paleo in November and have done well since. I switched jobs and was then able to afford the Insulite supplements. I even started the one-on-one coaching with the nutritionist of the program so that I could get supplements that are best for me.

During that time, the weather turned really cold very quickly and that just threw my knees off so much that I started using a cane. I also started having super limited range of motion in my neck. Using the supplements and really honing on my eating habits to remove foods that cause pain really started helping. In all of this, I found that only I can take charge of my health. Waiting for a doctor to point me in the right direction was no longer an option. I started acupuncture to help with knee pain so that I could wean off NSAIDs. I then started seeing a chiropractor to work on the neck stiffness. My doc would like me to see a physical therapist about the neck but I’m moving really soon so I’ll wait until after the move. My goal is to work out 3 times per week, minimum- 1 day at the gym; 1 day doing yoga, especially for neck and shoulders; and 1 day walking, though I tend to walk more than the other two types. I have released about 54 pounds since August and hope to lose about another 15 to reach goal. Walking is better and while I carry the cane as I walk, I no longer have to use it every time I move. I even rode a bike outdoors while on vacation!

This experience has shown me how to push for self-care and to look past traditional remedies that are not working, keeping in mind that “alternative” therapies may be what work best for me. If you are in a similar situation in which you took charge of your health and found the best path for you, share your story. I’d love to hear from you! Until next time 🥂

*Note: left picture is from one of my “higher” weights in 2016; the right picture is from June 2019- a difference of 50 pounds